Tuesday, November 25, 2008
my crafty sister
Posted by Joanna at 3:44 PM 3 comments
Thursday, November 20, 2008
Modern Medicine
A few nights ago we were talking with the kids about T being in the hospital. We then were talking about how everyone of our kids have spent the night in the hospital! WOW! Am was happy that she was the winner with 3 nights and 4 days. Chris and I were talking later about how if it weren't for modern medicine our family would be smaller and a lot different! Lets start with T- he is going to be the winner of nights in the hospital when this is all over and done with. Without modern medicine who know what would happen with the tumor and how this would all end up. When C was 9 month he fell off the bed and broke his arm. The x-ray showed a cyst. It was very close to the growth plate and our doctor was very worried that it would over take the growth plate and stunt the growth of his arm. He went through 4 surgeries to get rid of it. We just took him for his check up and you wouldn't believe the x-ray. It was amazing! It was a perfect healthy looking bone. We are so thankful. When E was three weeks old she got a fever and we took her to the ER. She had a spinal tap done there and we were told she had meningitis. She was in the hospital for 2 nights and three days. Am had Rota virus and like I said we were in the hospital for a few days. She couldn't keep anything down and was hooked up to an IV to keep her from dehydrating. Ab was the only one who has spent the night in the hospital, without being sick, but still needed overnight watching! We are counting our blessings for living in this day and age. Our family would be very different if we lived in a different time.
We spoke with Dr. Snyderman on Sunday and we were very impressed. He answered all our questions and was very confident. He said he thought he would be able to get the tumor in one surgery depending on bleeding. Most of it will be through the nose, but he will also have to do an open approach. He will go up under his lip and get what he can't endoscopically. T will have to go in the day before and have a pre-op embolization done which will clot one of the arteries feeding the tumor. The other artery is a main one and they will have to deal with the bleeding when they get in. He said it has gone into his cranium, but didn't think it has perforated the lining before you get to the brain. He has a neurosurgeon that will be working with him during the surgery. His surgery will take all day! If all goes well he will be in the hospital about a week. If he bleeds to much they will have to do it in more than one surgery and they usually wait a week in between. The surgery is scheduled for January 2nd. We can't thank you enough for the love and prayers you have given on our behalf. Please keep them coming and please remember the doctors who will be working on him. It is very scary, but we feel so calm and peaceful. We know all will be well.
Posted by Joanna at 7:05 PM 15 comments
Tuesday, November 11, 2008
the power of 5




Posted by Joanna at 7:38 PM 11 comments
Sunday, November 9, 2008
leaves and an update



We are still waiting, trying to find a surgeon. Dr. Miller called on Wednesday and said she was waiting for Dr. Jones (from Boston) to call back. He had our films and was reviewing our case. Saturday morning Dr. Miller called and said that she had called Dr. Jones twice and he hadn't returned her calls and that was a little concerning to her. She went ahead and called Dr. Snyderman (from Pittsburgh) and he called her back right away. This is where we really wanted to go in the first place. He sounds like he has great experience in this and there is a Skull Base Center there. Here is a link to a segment they did on the Today Show about a boy with an Angiofibroma who was treated in Pittsburgh, by Dr. Snyderman. It is very interesting. Dr. Miller Fedex Ts films and he should get them tomorrow and hopefully he will call soon. We really want to go to with Dr. Snyderman and his team. We are praying that we can find a doctor fast and that if Dr. Snyderman is the right doctor for T that he will accept or case and we can go meet him and get this going. Dr. Miller said we are going to have to rely on faith and once we get all the information we can, then make a decision based on faith. She said that maybe Dr. Jones not calling was an answer and he wasn't the best doctor for us. She really is great. So that is what we need. We need prayers that we will find the best doctor for T. One that wants to do this. One with confidence. One who can safely remove this tumor and keep T here with us!
Posted by Joanna at 1:46 PM 10 comments
Tuesday, November 4, 2008
Halloween



Posted by Joanna at 9:40 PM 10 comments